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Back in Orange

9/6/2017

 
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I do it to myself just often enough to remind myself why I walk the line the majority of the time. What do I do? I relax, I push my limits, I convince myself that I’m just a regular robust person who can do everything without boundaries. There’s a grace period. Then it catches up with me. Maybe I notice when I slip into Yellow. Usually I ignore the warning signs until I’m back in Orange. Then I go into panic mode, because I still do remember what it’s like to spend every day in Red.

What am I talking about? I'm talking about chronic pain and the various oddball symptoms that I experience along with it. What is true for me probably is not true for most people. What is true for me probably also is not true for other sufferers of chronic pain and fatigue, because not all of us have the same conditions or the same symptoms. My recommendation is always to track metrics, to keep careful records, so that you can find patterns and change your inputs to attempt to mitigate your results. I think that if even .0001% of my experience can be influenced by my behavior, then it’s worth the attempt.

Yellow: I get a headache, or I stay up a few hours late, or I overeat past a 7 out of 10 on the hunger scale, or my weight goes up more than 2 pounds, or I catch a cold

Orange: I get headaches more than one day in a week, or I get a migraine, or I have shooting pains, or I experience fragrance sensitivity, or my weight goes up more than 4 pounds, or I feel full-body aches consistent with my fibromyalgia days, or I start feeling chilly all the time and I can’t warm up, or I have a night terror

Red: Symptomatic nearly every day, migraines on a regular basis, night terrors on a regular basis, lethargic, dizzy spells, get sick and seem to get sick with something else days after I thought I was better, often simply bedridden with pain and exhaustion, too tired or ill to read, lose a patch of hair on my scalp an inch across

Right now, I’m back in Orange and I’m really angry with myself. Sure, I have plenty of reasons. We went on two vacations in a row, we went camping and slept on the ground in the cold, I carried 40 pounds of luggage around for a few days, we changed time zones, I got bitten by insects. These are problems that I can ordinarily correct by sleeping an extra hour or two per night for a few days after a trip.

Ah, but this time, it seems that I pushed a little too far for a little too long.

Whether it’s a cause, a symptom, or both, my body weight is perfectly correlated with my various other symptoms. It’s something I have to watch. Again, whether this is or is not true for other people is up to them to discover for themselves through meticulously tracking their own health metrics. It’s not a body image thing, it’s not a self-esteem thing. For me, for me personally, it’s a functionality thing.

We came back from Wyoming, the camping part of our vacation, and I was right at the weigh-in I had before the trip, within two-tenths of a pound. Despite all the sleeping on the ground in the cold and all the carrying of the forty-pound backpack and the fifteen-mile hike, I felt fine.

Then we went to Las Vegas for three nights. I came back four pounds heavier, and I was a mess.

How’d I do it? I Ate All the Things. In Wyoming, we were eating a lot of starchy backpacking food, but the portions were controlled and we had crucifers every day. In Las Vegas? Vegas, well. I think I had a half-cup of broccoli. Other than that, it was all stuff I almost never eat: Airport food! Potato chips! Salty mixed nuts! French fries! Hot chocolate! Cookies! Juice with HFCS! Appetizers! Huge portions! Desserts every day! We even had “chicken and waffles” with syrup at VegeNation. No schedule whatsoever. You can start to see where those four pounds came from.

Four pounds doesn’t sound like much, does it?

If you can gain four pounds and not notice, good for you. If you can gain four pounds and not feel immediate adverse health effects, good for you. That’s awesome. If that is true in your life, by all means, celebrate in a way that is meaningful to you. But please don’t tell me about it. I’ve had more than my fill of conversations where other people brag to me about their resilience in these matters. I’m a fragile person and I have to walk a fine line.

I gained four pounds, and what happened?

Shooting pains from my heel to my thigh, triggering my restless leg syndrome to the point that my husband noticed from across the room

Low-grade headache every day for four days straight

Weirdly sensitive to fragrance - I smelled someone’s nail polish outdoors and it seemed like I was “still smelling it” an hour later. Then it was someone’s body spray. This hasn’t been a problem for me for about a decade.

Waking up twice a night

Constant feeling of irritability

One full day of “brain fog” in which I struggled to stay awake, much less do any work

Welcome to Orange.

I’m handling this state of affairs aggressively. First, I’m tracking what I eat and making sure my meals are consistent in schedule and portion size each day. So far I’ve dropped 1.8 pounds in a week, which means I have at least another week of Orange to go. Second, I’m eating four cups of cruciferous vegetables a day. Third, I’m taking melatonin on a schedule. I’m still waking up a couple of times a night, and waking up too early, but at least I’m falling asleep on a reasonable schedule. Fourth, I’m exercising an hour a day. In Orange, I can still get a couple of hours of blessed analgesic effect after my workout.

No naps. No anti-inflammatories.

I have strong suspicions that all of my weird symptoms are tied to thyroid function. I had a thyroid nodule when I was 23 that was thought to be cancerous. All the symptoms of disrupted sleep, parasomnia problems, migraine, weight gain, lethargy, brain fog, pain, fatigue, low body temperature, and fragrance sensitivity were fully in place at that time. They’re my flags, indicating that something is off in my world. This is why I make exercise my major priority when I start to slip through Yellow. It’s the one thing that reliably seems to reverse the trend.

When I work out, I don’t feel as cold all the time, the headaches and night terrors disappear, I can sleep through the night and wake up feeling rested, and my energy level goes from a 6 to a 9. I feel like every hour I work out buys me two pain-free hours and an extra hour of solid sleep. That’s why I do it, even when I feel physically horrible and it’s the last thing “my body wants.” I push through and do it because I know I’ll get worse if I don’t.

I’m back in Orange, but I feel like I’m inching back toward Yellow every day. Here’s hoping that if I stay on track, I’ll be back out of crisis mode by the end of the month. It’s my wish that sharing my experiences might be of help to someone else in my situation who is desperately searching for answers. Track everything, be consistent, and keep holding on in the belief that a 1% improvement is always possible.


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    I've been working with chronic disorganization, squalor, and hoarding for over 20 years.  I'm also a marathon runner who was diagnosed with fibromyalgia and thyroid disease 17 years ago.

    I have a BA in History.

    I live in Southern California with my husband and our pets, an African Gray parrot and a rat terrier.

    #Questioner
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