It happened again just the other day. I got into a conversation with someone I had known socially for some time, a physically fit person who often talks about nutrition and healthy living. She shared that she had been diagnosed with a serious illness and that her doctor had told her there was nothing she could do about it through lifestyle modification. She wasn't any more impressed with this prognosis than I was when I got mine, and she set about it proving it wrong. In her case, it was an autoimmune disorder that can result in weight gain, fatigue, and joint pain, and the only known treatment is a lifetime on medication. Strange that, years later, nobody would guess she had ever been ill.
My radar is always pinging for stories of this nature, and I run across them all the time. Mine was an endocrine disorder. The story I just told involved an autoimmune disorder. Recently, I reviewed Shawn Stevenson's book Sleep Smarter, in which he shares how he reversed his degenerative disk disease. My husband had two herniated disks in his spine, and they healed. My brother broke his back in three places, and not only did his spine heal, but he goes snowboarding like nothing ever happened. These are not conditions like the common cold; these are serious problems. They would have been, anyway, decades in the past. They might still be, for the ordinary sort of person who accepts lame, textbook advice from a conventional physician.
Now, I believe in Western medicine. I'm vaccinated for everything I can be, I get the flu shot, and I'll look forward to more vaccinations as they are developed. If I'm prescribed antibiotics, I take them as directed. I go to the doctor when I have to. That, though, tends to be when I need a rubber stamp on a referral to a specialist. My most recent doctor is no good for much else. When I had my first appointment with her, I told her about my history with overcoming fibromyalgia, and she told me that I must have been misdiagnosed, because "people don't get better from fibromyalgia." She believed this because her own sister-in-law has it. I hope the sister-in-law isn't her patient. I also wonder about a medical training system that teaches physicians to brush off anecdotal reports from patients who healed, rather than enrolling them in some kind of study. Examine me! I'm right here and I'm willing!
One of the biggest issues with the ongoing professional development of physicians is that they spend their days with ill and injured people. Healthy, fit, active people only go to a doctor when there is an immediate need. Therefore, there's no feedback loop of information from people who are succeeding in being well. It's common sense for a doctor to say, Well, this is what tends to happen and doing this for the majority of patients tends to work out okay. It would not be common sense for a doctor to say, This illness derives from the patient's comfort zone, so dramatic lifestyle change will probably be necessary to beat this thing. It doesn't even seem to be common sense for a doctor to say LET'S BEAT THIS THING!
Another issue is that people in the medical field tend to be over-scheduled, exhausted, and burned out. They don't necessarily have time to keep up on the cutting edge of new research. If there were no educational requirements for them to learn anything about nutrition, for example, why and when would they pick up extracurricular information on their own? If they themselves are not models of peak health and fitness, can they really teach their patients how to live this way? I've had precisely one doctor who was anywhere near my fitness level, and she told me I inspired her to train for a triathlon. My dental hygienist told me I inspired her to ride her bike to work. My health professionals take health advice from me, and that's either a great thing or a complete travesty.
The point of all this is that it is UNSCIENTIFIC to tell patients that their conditions are incurable. It is UNSCIENTIFIC to rule out nutrition or physical activity as even remote, fringe possibilities. The real question that should be raised is why anyone would deviate from a diet complete in all necessary micronutrients, and why anyone would remain sedentary for the majority of each day. There is a vast gulf between what research tells us about health, and what our doctors communicate to us. When my doctor condescendingly patted me on the shoulder and told me not to bother with lifestyle modifications, he instead should have encouraged me to do my own research and take detailed notes. I was only twenty-two at the time, and he could even have encouraged me to pursue a career in the health sciences. Instead, what I get from conversations with medical professionals about my remarkable recovery is skepticism and pushback. I'm not supposed to exist, so they act as if I don't.
My advice to anyone who "has a diagnosis" of any kind is to question it. If a doctor told you that what you have is unresponsive to lifestyle modifications, get a new doctor. Certainly nobody can stop you from tracking your own health data and reading as much new research as possible. I'm talking about actual peer-reviewed journal articles, not blogs, although blogs can be included if the blogger can demonstrate results with your specific issue. I accidentally cured myself of fibromyalgia and thyroid disease, but it was published research that led to reversing my problems with insomnia, night terrors, and restless leg syndrome. I also relied on published research to reach a healthy weight. I follow Alzheimer's research because I have had relatives die of that disease, and I believe I can mitigate my risks. I've made a regular habit of reading about new medical research for the last twenty years, and it's paid off abundantly.
The biggest difference between healthy people and chronically ill people, in my experience, is that healthy people refuse to accept a diagnosis as the final answer. We won't tolerate being ill any longer than we must. We never stop looking for more information. We do the utmost to take care of ourselves, eating, exercising, and sleeping as well as we know how. I've met a couple of people who claim they have "never been sick a day in their lives," but almost all of the fit, healthy people in my acquaintance have successfully overcome at least one major health condition. Whether these are supposedly genetic conditions, injuries, or lifestyle illnesses, there is always something one can do besides feel helpless and hopeless. Even if I got a diagnosis (and a second and third opinion) claiming I would die tomorrow, I'd still do everything I could to be the best possible patient and research subject. I need to feel that my pain and suffering matter in some way, that my experience can be used to further research and to help others with the same condition. Being ill doesn't have to mean being a victim. Being told I'm ill doesn't have to mean it's true, or that it stays true.
I've been working with chronic disorganization, squalor, and hoarding for over 20 years. I'm also a marathon runner who was diagnosed with fibromyalgia and thyroid disease 17 years ago.
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