You know how I’ve mentioned weird heartbeat issues off and on ever since I got COVID last year? Well, finally I had an episode strange enough that I wrote to my doctor about it.
I got an email asking if I was available for a phone appointment. They wanted to talk to me either that day or the next day.
I talked to a nurse practitioner on the phone. She said I should go to urgent care and tell them I needed an EKG.
I did as I was told. I described my symptoms and prepared to wait around for approximately five hours, like usual.
I had barely made it to the restroom before my phone pinged. They were ready to see me.
I went back and was taken to an examination room. A nurse wheeled in the EKG machine and had my results within minutes. The doctor came in almost immediately. He told me he was going to do a full cardiac work-up.
He asked me a series of questions and then sent me off for a chest x-ray and some labs.
This was more or less what happened when I had the secondary respiratory infection last year.
I couldn’t believe the rapid pace at which all this was happening. I barely had time to visit one part of the clinic before it was time to rush off to another.
I texted my husband and he said that if you complain about chest pain, you go right to the front of the line.
The test results had been reported within hours. EKG normal. Blood pressure normal.
Seven blood panels and the chest x-ray. All normal.
I got a voicemail from the cardiac doctor saying as much, and that he would forward the test results to my regular doctor.
Normal? Okay. Then what was going on with my heart??
Two interesting things happened at that point.
One, the heat was turned down. All the frenetic activity from urgent care came to a halt. We have examined you and determined that nothing is wrong with you, therefore please go away and be weird elsewhere.
Two, an eighth test result straggled in a few hours later. My TSH hormone levels.
Suddenly everything became clear to me.
My TSH levels are back to where they were in my early twenties, a sub-clinical low “normal” result that, in my body, causes me all sorts of problems.
I could have put together the clues for myself, having had the experience and the reading in my repertoire for well over twenty years. I missed what could have been obvious to me because I was busy blaming everything on COVID.
Constantly feeling cold, check.
Tired all the time, check.
Trouble dropping weight, check.
In fact, now that I thought about it, I had been noticing a visible ring around my throat and blaming it on excess body weight and/or bad posture. That same sign showed up when I developed a goiter at age 23.
Back at that age, I started having fainting spells. Vasovagal syncope. I had an ultrasound of my heart and an EEG. Both normal. They put me on beta blockers. I don’t remember whether I had weird heartbeat problems at that time, although I might have.
At other times in my life, I have felt dismissed and ignored by medical professionals. It has been terrifically motivating for me. Okay FINE, I’ll do my own research and heal myself then!
This time, a wave of optimism and joy overtook me. I have data! I have metrics! I have objective criteria to use for myself!
Also, I have been here before! I know what to do!
The best thing about this somewhat useless visit to urgent care is that I got information that my heart is normal and… MY LUNGS ARE CLEAR. No more scarring.
What all this meant to me is that I should be clear to commence running again.
The thing that healed my low functioning thyroid last time around was increasing the amount of very strenuous exercise I did. I stumbled across this by accident. This is good news for me, because emotionally I am well suited to endurance sports. It’s great for regulating my mood and dumping whatever toxic stress might be circulating in my system on any given day.
Such as: the ‘Why won’t doctors listen’ rant or the ‘Why is this still the “standard of care” when it doesn’t actually help people’ perseveration or the ‘Why isn’t more medical research based on female bodies’ query.
I can credit hundreds of miles on the trail to each of these, and thank you!
What I noticed about the weird heartbeat episodes I had been having was that they only came up when I was relaxing. I would be either sitting on the couch for at least an hour, or I would be lying down. It never seemed to happen when I was walking or climbing stairs or scrubbing the bathtub or folding laundry.
Obviously relaxation isn’t bad for me - or anyone. It just seemed that if this was when the weird heartbeat stuff was happening, then moving my body was presumably safe.
When I say “weird heartbeat,” I mean that sometimes it would beat very hard, sometimes it would beat faster, and sometimes it would seem to skip a beat. It wasn’t all that consistent. Only concerning.
A different person would probably campaign for a prescription medication at this point. That is good self-advocacy. For myself, I tend to be chary about taking prescriptions, feeling that I tend to be the side effects person. My test results would probably rule out thyroid hormone supplements, which is smart, because they can cause heart problems if they aren’t needed.
My goal from here on out is to increase my TSH levels. It will probably take me a few months.
What happened to me during the pandemic is probably similar to what happened to a lot of other people. I almost never leave my apartment to this day. I used to walk an average of 8 miles a day, three on an off day, and I was in motion almost all the time. Suddenly all that came to a halt, and I spend almost all my time now in a sitting position.
My body is like a rusted-out dusty old project car sitting in the driveway on four flat tires.
While I probably can’t do all that much to increase my background activity level, I can make sure I do at least an hour of cardio most days. I’ll know I am making progress when I quit shivering with cold when it’s 68F and when I quit noticing the weird heartbeat problem.
In a few months I will ask to have my TSH levels checked again, and then I can share a side-by-side comparison with my doctor. Maybe my experience can help inform his response, or Kaiser’s response, the next time a former thyroid patient calls in with a weird heartbeat mystery.
Sitting around with sutures in my midsection has given me a lot of time to think. All sorts of things have been on my mind, but they always circle back to my current situation and how bored and restless I feel. I’ve also been contemplating how completely and totally this stupid medical issue has managed to derail my workout goals.
I think it’s the fitness stuff, more than anything else, that makes people quit making New Year’s Resolutions.
Naturally the cruddy winter weather and holiday feeding frenzy have most of us at our most well-padded at the changing of the year. We completely forget what it feels like when the weather is fine and our schedules aren’t triple-booked. Skip winter and only count the other three seasons.
(It’s the opposite for those of us in hot climates, when winter is actually the best time for outdoor workouts and summer is the one we need to skip).
I had this great idea that I was going to win 2019 by spending the last two months in the gym, finishing the year on a high note. I was going to start running again! I was going to train for a race in March!
Literally two days later, I woke up with a weird hard spot, spent a month on antibiotics, gained 7 pounds in 5 days, had surgery, and then spent nearly two weeks changing bandages and trying not to move. Now I’m waiting for the nurse to call me back because this special butterfly bandage fell off, and it was supposed to last ten days.
No running. No yoga. No bending or twisting. Actually no sweating.
I feel exactly like a display butterfly with a pin through its thorax.
I was talking to a friend who has (totally unwarranted) body image issues. I told her, Whatever you feel that you look like, at least you don’t look like a surgical incision with sutures poking out.
Anything and everything is better looking than an open wound.
Enforced gratitude is universally annoying, but hey. Why is it that we insist on taking what we have for granted? We always have to seek out whatever it is that bothers us, and harp on it, no matter what else is going well in our lives.
Waaa, waaa, I hate going to the gym, everyone snivels. All the time. Well at least you can go if you want to. At least you’re allowed.
Go for me, will ya? Someone? Use my energetic voucher, it’s just floating around out there.
I’m climbing the walls over here, figuratively, because I can’t actually climb anything in the near future. The thing I would most like to do is to sprint up a staircase, like in the Metro station. But I can’t even get down and do a plank.
Not that I “can’t” do a plank - I can probably still hold plank position for a full minute - just that this wound in my midriff is still trying to heal.
It’s been a rough year for me. While we finally moved and I’m starting to recover, a year of chronic sleep disruption and deprivation was really affecting my health. I was exhausted all the time, having migraines and night terrors again, and coming down with a cold once or twice a month. I put on weight and that only seemed to make it worse.
Some people claim that they feel their best, happiest, and most powerful when they’re bigger. Good for them. Must be nice. Enjoy in good health.
For me, weight gain is always a symptom that something is wrong. I think it has to do with my thyroid. The more I gain, the more I feel chilly, tired, sad, and prone to headaches. The first sign is when I’m so tired that I don’t bother to make the bed.
As I turn it around again, which so far I have always managed to do, I start to feel more alert, cheerful, and busy. It’s like a spell wearing off.
This is why I’m on a plan to get my weight back down even though I still have to try to move as little as possible. It just isn’t helping. For whatever reason I magically enlarged while on antibiotics, it’s not making my life any easier.
The most obvious reaction to a situation like mine would be, “I couldn’t help it, what do you expect me to do about it?” Shut up and leave me alone, right?
I see it differently. I see it as an alien interloper trying to claim my poor middle-aged carcass as some kind of host. I’ve seen too many Alien movies to think that’s any kind of good idea. Get the heck out of my body! Begone!
“Me” is my spirit, the part of me that thinks and speaks. Whatever my body is doing at the moment is changeable. My physical vessel looks a bit different from year to year, similar to the way I might change my wardrobe and hair style. I don’t identify with *looking* a certain way, I identify with *feeling* a certain way. I prefer the upbeat energy level to the mopey, tired level.
I’ve taken off 5 of the 7 attack pounds already. Nod to the restoration of my normal balance, now that the antibiotics are out of my system. Also, I have been diligent in staying on track with what I eat, ignoring the typical background noise of cookie, candies, and other holiday treats.
I saw a cookie and I didn’t put it in my mouth. Santa Claus fainted and the reindeer crash-landed in a tree. The North Pole tipped over and rusted out. It was me, I did it.
It just so happens that I should be good to go just in time for New Year’s Eve. Nothing more than a coincidence. Every day is just as good as any other for reclaiming your body and your physical power base. I see it as a sign, though. The first day that I can, I’m lacing up my shoes and getting my beat back. Just because I had a do-nothing year of exhaustion, does not have to make it permanent. When I look back thirty years from now, it will just have been a fitness speedbump.
Boxes are everywhere and my neck is all gimped up. We’ve been packing for almost a week, quota five boxes a day, and I’m feeling it. All I can do right now is fantasize about doing yoga in our new living room.
There isn’t a huge difference between a 612-square-foot studio and a 650-square-foot one-bedroom apartment. It’s just enough, though, that there might be enough room to do a workout in the living room when there wasn’t before.
I’ve tried P90X. I’ve tried yoga. I’ve tried burpees. I’ve tried hula hooping.
The only thing I can effectively do in my studio apartment, even when I move furniture out of the way, is to jog in place.
I often do. At the end of the day, if I haven’t quite done enough to impress my activity tracker, I jog in place until the green loop is closed. I would go outside but then I’d have to put my shoes back on.
I’d go to our apartment gym, but there lies madness. I love working out late at night, see, and once I started using the elliptical at 10:00 pm I’d be out there every night. This doesn’t work when you have upstairs neighbors who get up between 4:30 and 5:30 every morning.
The first law of the workout is to understand your constraints. Know your first sixty-five layers of obstacles, reasons, complaints, and excuses so you can plan something that is actually possible in your routine life, every day.
I’ve got grievances that have affected my workouts.
I also have a history of thyroid problems, and when I quit working out for an extended period, I descend rapidly into a netherworld of chronic pain, fatigue, migraines and tension headaches, low mood, and general crabbiness. I can feel it happening. I can feel the difference between the lower range of thyroid function and the middle range.
It’s like quicksand. The more tired I get, the less I want to do, and the more I sit around, the farther I fall.
My life is easier when I work out at least a little every day.
That’s why I wear the fitness tracker, it’s why I walk everywhere, it’s why I always take the stairs even when I’m carrying a suitcase, and it’s why I’m so invested in whether I can do a floor workout in my living room.
This is part of the connection between clutter and physical health.
My people do not like the feel of a reasonably arranged room. They will continue to pile up boxes and bags to prevent having extra space or blank walls. Alas, the effort involved to carry in shopping bags and pile them around is not enough to keep one’s energy levels up.
Living in a tiny, crowded room means sitting still most of the time.
Thus the nest. My people usually have a nest that is easily identified from across the room. There will be a spot, for instance in front of the computer keyboard, that will be surrounded by small important items like a tea cup or the TV remote. Other popular areas are the bed, a spot on the couch, a favorite chair, or the driver’s seat of the car. While there are seated workouts that can be found to accommodate physical therapy situations, my people aren’t doing them.
It’s not a problem, of course not. It’s not a problem when 40% of Americans have zero workout. It’s not a problem for extended phone stroking, gaming, binge-watching, or other seated activities.
It only starts to become a problem when it’s time to pack and move, or in an emergency situation when sitting still is no longer an option.
Eh, but that’s not gonna happen, right? *wink*
Here I am, packing our stuff, working on Box 28 and maybe ten to go. I’ve walked home balancing stacks of folded cardboard on my head, causing a man in a convertible to pull over and ask if I needed a ride. (Nice). I’ve folded and taped, lifted and hauled and stacked. Not currently being a weightlifter, I am feeling this unfamiliar effort in my neck and shoulder. That’s a place where I carry a lot of tension because my real workout, my true default mode, is hunched over a keyboard.
That’s my reason for walking so much, walking when there are tons of other outdoor workouts available to me.
Walking causes thousands of micro-movements when I swing my arms. I would never do that much physical therapy in any other situation. Walking, though, is fun. It’s something I can ignore, too. I walk to do my errands because we sold our car over two years ago. I walk when it would take twenty minutes longer to wait for the bus. I walk to go to the movies, the library, the grocery store. I walk a minimum of four miles a day, usually six, sometimes eight to ten.
When I’m not doing as much walking, like when I’m home packing boxes, I start to feel it right away. I feel it in the middle-aged places.
Habit research shows that people tend to have the easiest time switching habits after a major change like a move or a new job. I know this is true because I’ve moved so many times in my adult life. My husband and I are both planning around this blip in our schedule, thinking about what we want to be different.
One difference in our new place is that we’ll be on the fifth floor instead of the ground floor. We have the option to take the stairs when we walk our dog and do the laundry. Our building is also on the same block as our martial arts gym.
Mainly, though, we won’t have upstairs neighbors anymore. I’m trying to remember what it was like when I could sleep as much as I wanted, back when we were newlyweds, back when I started running for the first time. I’m trying to hold a vision of something I want.
I’m trying to imagine what I will do differently when I have room to move.
Pain comes in three parts, and this is helpful to know when you are in pain and feeling trapped. It’s also helpful to know if you are tired of pain and learning how to make it go away.
First, there is the physical source, the injury or illness that is causing the pain.
Second, there is the neurological response to that injury or illness.
Third, there is the psychological reaction to the pain signal.
Let’s go into more detail about how these are separate and distinct elements of pain.
The physical source is not the same as the pain. This varies depending on what’s going on, but there are lots of examples. For instance, a few people have a rare genetic condition in which they cannot feel pain at all. This is very dangerous, because they won’t always realize if they are burning themselves or walking around on a broken bone. Another example would be a cancerous tumor, which might grow undetected because its growth causes no pain.
Another way to put this is that pain is not guaranteed to match its cause.
A neurological reaction may not correspond perfectly to illness or injury. One example of this is referred pain, when the pain is being caused in one part of the body but it shows up elsewhere. Twenty years ago, I had a nerve plexus in my shoulder, which didn’t hurt, except that it caused sharp stabbing pains in my thumb and occasional numbness in my hand. Another example would be pain with no obvious cause, or something that is thought to be “genetic” but that turns out to be easily manageable with lifestyle modifications.
Another way to put this is that the root cause of pain can be mysterious and hard to diagnose.
The psychological reaction to a pain signal is variable. This is important because it’s something we can learn to control on our own, regardless of what’s going on. And that’s a hot take.
A contrary opinion.
Something that often offends people!
What we want to hear when we are suffering is exquisitely calibrated empathy and consideration. We want levels of caring and support that are, sadly, perhaps non-existent. We want validation and recognition of how hard our circumstances are. Even if we got it, though, it wouldn’t help. Kindness is no analgesic. Even if everyone else on earth knew how to behave with perfect tact at all times, it wouldn’t remove the pain or the source of the pain.
See also: Grief
What we don’t really like to hear when we are struggling is that there is some kind of secret key to make it all go away.
The reason for this, I can say with experience, is that it always comes across as blame. If I can do anything at all to control this pain that is taking over my life, then shouldn’t I already have done it? If my pain is manageable, then am I not at fault for not managing it? Why are you bothering me with this, you cruel and heartless naysayer? What are you implying?
There is something about the concept of chronic pain that makes it feel permanent, monumental, a sort of organ that only the sensitive have. My pain belongs to me and defines my life experience. Telling me I can make it go away is like denying a fundamental part of who I am!
Telling me that I can stop being in pain is refusing to accept my perspective, rejecting my description of my life and my experience. I’m telling you one thing, plaintively, and you are shutting me down and telling me something else.
You don’t know what it’s like!
This can be crazy-making for the person who genuinely does know what it’s like, who is sincerely trying to help.
Honestly, who else wants to talk to me about migraine headaches other than another migraineur? Who wants to talk with me about parasomnia disorders other than another insomniac? Et cetera.
When I hear about another person with a migraine, or another person with a sleep disorder, or someone else who was diagnosed with fibromyalgia, I usually start crying. It’s embarrassing. Tears start coming down my face. I want to drop everything and talk to them right away. I can help you! It doesn’t have to be like this!
My emotional overwhelm stems partly from fear that what I’ve been doing so successfully will stop working, that I’ll wind up back in the tar pits.
I remind myself that twenty years ago, when I was first diagnosed (first migraine, cancer scare, fibromyalgia), not all the information was out there. Doctors weren’t telling me anything helpful, just saying “it’s genetic” and “no, sorry, there’s nothing you can do” when I asked about lifestyle improvements. (WRONG, thanks for nothing). The things that did eventually work would not have been things I wanted to do, or understood how to do.
I thought all I could do was meticulously explain to everyone I met exactly how my illness worked.
I thought I needed to do this so that people would know to let me off the hook.
In the tar pit, everything on the surface level looks like an unmanageable amount of work. What, showing up to things? I went to the movies in my nightgown once because that was my version of fighting hard: Hey, at least I’m leaving the house, what do you want from me?
I felt challenged on all sides. How dare people question my experience or try to help me troubleshoot my situation? Can’t you see how difficult things are for me right now?
I recognized myself when I happened to be present during an awkward conversation. One party wanted to talk about her chronic pain issues, only the other person countered that she had an appointment with her oncologist the next week. This is by no means the only time I’ve overheard a Battle of the Health Problems.
Who wins these discussions? The one with the fractured spine or the one who went into anaphylactic shock and has to carry an Epi pen?
Look, the only way to win is to beat the illness, because pain is the real enemy here. That’s where that tricky old third part to pain comes in. How we react to it.
I started to win my fight when I realized that my level of pain was consistent (which means predictable), and that my condition was not degenerative. I found a sliver of gratitude in that, that at least I wasn’t going to wind up in a wheelchair or on an oxygen tank.
This is my nature. If I got to that point, I’d probably start scraping the barrel and looking for some other small sliver of gratitude. Such as that at least it was me, not one of my nearest and dearest. I’d take it on myself before I’d wish it on someone else.
I started to win my fight when I got curious. How does it work? What’s the state of the art for cutting edge research in this field? When I found out I might have cancer, I went directly from my endocrinologist’s office to the public library, where I found two books on the subject. I’d read half of the first one before my bus pulled up to my stop, and I’d finished both before bedtime the next day. My natural curiosity led me to pay attention and start tracking my symptoms, looking for patterns.
Taking pain apart, disassembling it into smaller pieces, is a way of figuring out how it works. Once we figure out how it works, why then, we have a realistic chance of turning it off. That’s what I did and I hope that I can help others to do the same.
Physical transformation is hard to imagine because we identify with our flesh. We think the vessel that we inhabit is simply what it is. My personality is one thing and my body is another, a separate entity, an enemy to my peace of mind. My body is just a sort of car that I drive around. We can’t picture ourselves inside a different body because the only way for it to feel real is to already have done it, to have lived the transformation.
We don’t really believe that our behaviors can have any kind of impact on our energy level or our physical selves.
I know this is true because I’ve lived it, over and over. When I talk about physical goals, I don’t just mean “weight loss,” although I’ve done that too. I mean any kind of goal that affects the body, from the surface-level cosmetic or fashion makeover to getting off medication and everything in between.
In my adult life, I have worn eight different clothing sizes. I have changed my shoe size, my ring size, and my bra size. I have changed my thyroid hormone levels, my blood pressure, and my resting heart rate. I have beaten chronic pain, fibromyalgia, thyroid disease, migraine, and a parasomnia disorder. I have been on, and then gotten off, thyroid medication, beta blockers, and an inhaler, among others.
It is physically possible to alter your own organ function, blood chemistry, bone density, muscle mass, and of course your overall composition of adipose tissue, commonly known as body fat.
If you don’t believe any of this, please do your own research and talk to a few medical professionals.
Or you can also pause and ask yourself, do you take any medications? If you do, then you do believe you can alter your blood chemistry, at least temporarily, and you can do the same with a bottle of booze. If you believe in the efficacy of a single pill, do you also believe in the potency of food that you eat in quantities of hundreds of pounds per year?
Physical goals are like any other goal. Most people fail because we can’t maintain our focus or attention on a single goal for any length of time. We’re quite capable of holding several mutually exclusive goals in our hearts at once. An example would be independence and freedom on the one hand, and desire for a romantic partner on the other. Another example would be the desire to be debt-free on the one hand, and the desire to spend lavishly without constraint on the other. A classic New Year’s example would be the desire to spend the same chunk of free time reading more, playing an instrument, studying a new language, getting more sleep, and of course continuing to do all the same things we did yesterday. Any time we choose a single goal, we feel sick inside at all the supposed opportunities we’re sacrificing.
We wind up doing nothing other than the default because we want so badly to keep all our options open.
The truth is that if it feels like a sacrifice, you’ll never do it, you never will. That’s because it means you think your default is working out great, and you love it. You think you’ll be “giving it up.” If you feel that way, then of course you’ll never meet your goal, because in your heart you believe it’s worth less than what you have right now!
That’s just as true of contemplating a pilot’s license or learning to surf as it is of changing your physical form.
I’ve never eaten a mozzarella stick. Most people would hear this and think there’s something wrong with me, that I’ve ruined my own life by depriving myself of fun and normal social evenings.
The truth is that the first time I ever saw a mozzarella stick, I couldn’t believe such a nasty thing existed in this world. They’re revolting! I wouldn’t put one in my mouth for love or money.
It’s relatively easy for me to maintain “the healthy weight for my height” because I think a lot of conventional industrial foods are gross. I don’t believe in temptation. If there’s anything I want to eat, I eat it, although I also believe that I don’t need to eat every single thing every single day to have a rich and fulfilling life. Whether I sated myself with chocolate or chips or croissants or crackers is not my measure of contentment. Any model of ‘sacrifice’ or ‘deprivation’ or ‘good’ or ‘bad’ is meaningless to me, not relevant to how I structure my goals.
What I measure is how I feel. How do I feel when I wake up? How do I feel when I lie down to sleep at night? How do I feel throughout the day? Do I have the energy to do the things I want to do?
I also measure myself against common health metrics. Not only do I compare my own lab work to the average for my age, I also compare myself to other members of my family, expecting that what they are facing is likely for me at the same age. It’s likely unless I behave differently than they do. Most health problems take decades to manifest.
When it’s time to clarify a physical goal, it pays to get extremely specific, as narrow in definition as possible. That’s because we need to have some kind of quantifiable metric, some kind of data to track. How else will we be able to compare our results across a year?
If it’s pain or mood, come up with a rating scale that makes sense to you. Emoticons or color swatches, weather patterns, stars, letter grades, a numerical scale from one to five or one to ten?
If it’s mobility, take pictures and use a measuring tape. You can see how much your range of motion has improved that way.
If it’s posture, photos are one way to measure your progress and your self-assessment of back, neck, and shoulder pain or tension is another way.
I wear an activity tracker, and I keep an eye on how much of the day I’ve gotten my heart rate up, how many miles I walked, how many flights of stairs I climbed, how many calories I supposedly burned, and my resting heart rate. Every year or so, I have my blood tested, and I look carefully at each factor. It’s so important not to rationalize anything that is out of the norm. I’m doing this for myself, and it doesn’t matter to anyone except for me.
There are two ways to measure goals, lead indicators and lag indicators. Most goals are lag indicators, measurements that come after a certain amount of time has passed. We can only control them through repeated action. Debt is a lag indicator, a pile of laundry is a lag indicator, a failed friendship is a lag indicator. Chronic lifestyle-related health conditions are lag indicators, migraine is a lag indicator, body fat is a lag indicator. We have to find lead indicators to track that are directly linked to these outcomes. That’s how we discover systems and protocols that work better than our default. Another way to say that is that we can behave our way into a happier, easier life.
What would make your life easier? What are physical changes that could move you from tension to ease, from pain to freedom, from stiffness to mobility, from medicated to ordinary? Which body parts do you want to integrate so that they feel like working parts of your mental and emotional self? Do you believe these changes are possible for you?
Do you want this physical goal enough that you could consider shifting away from your default?
I’m going to write about body weight, because this year it’s relevant to my interests. If this is triggering for you, I apologize, and hopefully you already know to protect yourself by closing tabs and stopping yourself from reading further, because this isn’t directed at you. I’m writing about my body, which belongs to me, and my body image, which is A+ and also belongs to me. I can’t write about other people, their bodies, or their body image because those are all outside of my expertise. Probably what I write will not reflect the experience of most people who ever lived. I say that because I rarely read anything written by other people about their bodies that fits my feelings or my life. If you’re still reading, then maybe you’re curious what it would feel like to be someone else?
Someone who likes being a person in a body? Someone who experiences this thing called “my body” as cooperative, convenient, and useful?
Okay, so the main way I relate to having a body is that it is the vehicle I use to carry my consciousness from place to place. Another way I use my body is as a test lab for the performing of interesting experiments. There is a huge amount of divergent “health” “information” out there. The way I make sense out of it is by trying it out on myself and seeing how it goes.
The first thing I discovered is that sleep is my main health priority, without which nothing in my life works. Being sleep-deprived makes me moody, lowers my energy, and apparently interferes with my immune system. I sleep as much as I can and I feel totally entitled to it.
The second thing I discovered is that my own personal body weight is strongly correlated with what used to seem like random, unconnected issues. The heavier I am, the more migraines I get. The heavier I am, the more often I get colds and flu, and the longer it takes to recover. There is a certain specific body weight, above which I get headaches and night terrors, and below which I do not. Above that weight, I’m prone to dizzy spells, and below that weight, I’m not. I have lurking suspicions that all of these things are somehow connected to thyroid function, to the endocrine system, or to hormones in general.
These are the reasons why I monitor my body weight. Apparently other people do it because they care what other people think of their appearance? Or they tie it to some kind of performance metric so that they have a stronger sense of autonomy and control? Perfectionism? Self-loathing? I dunno. I don’t even clean my house for those reasons, although I do run a tight ship. I pay attention to how much I weigh because when I don’t, my life sucks and I feel like crud all the time. When I do, it’s straightforward and fades into the background. It’s just the simplest way I’ve found to keep tabs on the most obvious, easily tracked trend line on my physical dashboard.
(I can step on the scale every morning, and I don’t have to use a measuring tape on various parts of my body, draw my own blood, or take other kinds of samples which I lack the laboratory equipment or knowledge to analyze).
I like numbers. They feel like a neutral feature of the world, like... sand. Or pebbles. They’re just there and they only have the meaning that we ascribe to them.
All right, so here’s what happened. I’ve been training hard at martial arts all year, and along the way, I gained a bunch of weight really quickly. Some of it was muscle, and most of it was adipose tissue, also known as excess body fat.
This became a problem because, for the first time in 3-4 years, I started having headaches and scary sleep episodes again. I kept thinking, Oh, that’s just a fluke, until one morning when my husband remembered me doing stuff in my sleep and I did not remember. I HATE THAT. There’s basically nothing more humiliating and dreadful to me than when I... sleepwalk, flail and hit my husband, scream, have conversations... DO THINGS in my sleep and my conscious mind has exited the building. I’d genuinely rather have incontinence than this. It makes me feel like I’m developing dementia. That was the trigger. I absolutely cannot allow myself to continue up that road. My sleep gets shattered, and when that happens I can’t focus during the day, it destroys my productivity, I feel weepy all the time, and I just start getting sick a lot. None of these things are what a fork is for.
Time to slow my roll.
I knew exactly how I’d gained the weight, because I’ve done it so many times and also because it was somewhat intentional. I had this idea that if I added more muscle, everything would be fine. Apparently not. I think what goes on in my body is that whatever blood sugar conversion process is happening when I up my calorie intake and add body weight, whatever it’s composed of, that’s the thing that triggers all my other health issues. I was doing it too quickly.
My goal was to gain 15 pounds of muscle in a year. I put on 4 pounds the first month, maintained for three months, and then put on an additional 5 pounds the fourth month. May 1 I weighed ten pounds more than I did on January 1. By my birthday I’d gained a full-on fifteen pounds. Okay, that would be AMAZING if it all came from muscle! Muscle on a female frame of my size happens at a rate of about a quarter-pound per week. Let’s say I had 8 pounds of muscle which I dearly loved, and 7 pounds of (additional) extra body fat which I did not want or need.
What to do?
Handle it in a competent, businesslike manner, the same way I would pay off a debt or clean out a closet, of course. The same way I tackle most problems.
It was surprisingly simple, again because I know what I’m doing. I had gained the extra weight by adding about a thousand calories a day to my diet, often in the form of French fries and cake. This was on the advice of my husband, who noticed how exhausted I was when I would come home from class, and suggested that I eat more. Once I built my endurance, stamina, and strength from training hard for 8 months, I was ready to switch gears.
This is what I did. I set a deadline: my wedding anniversary trip. I set a goal: two pounds per week. I made guidelines, which I followed: keep a food log every day; avoid desserts, fries, appetizers, and sweet drinks for the duration; add cardio. I was very, very pleased to find that I could handle an hour-long martial arts class and an hour on the elliptical on the same day!
My arms and legs have been getting really strong, and I’ve been seeing muscle definition I never had in my life before. I also had this tubby belly. As far as I can tell, almost all of the 8 pounds I lost over four weeks was sitting right there, right in the stroke-risk, heart-disease sector of my midriff.
During the process of cutting weight, I felt more energetic. I’d really missed my cardio workouts, and it seems like it has helped my overall mood and energy level. I also use that time to read the news and catch up on my email, which is helping me to feel more organized and productive. The result was that not only did I make my goal, I came out on the other side feeling like I had my life more together.
My hubby bought me a new bikini for our anniversary, which, let’s just say they come in every size for a reason. If you want to wear one, wear one. For us, it symbolizes a commitment to spend more time relaxing in the hot tub.
For my next trick, I’m going to work on learning more core exercises. This is the one obvious area of my body where extra muscle and attention would be interesting and useful. I’ve never known what it was like to have a strong core, and I’m determined to find out.
Life is an endless tidal wave of BS. Accepting that is a great starting place. It certainly makes Stoic philosophy feel more relevant. There’s this other point, about the Four Noble Truths of Buddhism, which I explain thus:
Sometimes, pain (trauma, drama, difficulty, suffering) comes in the form of natural disasters or external events of vast scale. We cope as well as we can. Usually, though, difficulty comes from within, from our expectations and assumptions. We cause ourselves significant grief by setting up a lot of demands and rules that other people and the world in general never seem to quite meet. This is part of how we convince ourselves to believe in difficulty.
It’s difficult when we want people to behave in a certain way, and they won’t.
It’s difficult when we expect certain actions to lead to certain results, and they don’t.
It’s difficult when we expect change to come on its own, in a form we find acceptable, and it doesn’t.
It’s difficult when we insist on getting the results without the effort, and we can’t.
What if, instead, we believed in ease? What if we believed that really, things are simple and straightforward?
Nobody is quite as good at overcomplicating and overthinking things as I am. See? I’ve claimed this extravagant level of difficulty for myself. I buy into it as a part of my identity. I’m proud of it in a way. Look at me! I’m an insomniac! I’m a stress case! I’m tightly wound! I have a thin skin, too! I pledge allegiance to my difficulties.
I got curious about all of this, and started wondering what would happen if I just tried to Do the Obvious instead. Whenever I wanted to try something new, I would first ask, what is the most obvious advice that anyone would give to a beginner? What’s the checklist? What are the obvious first steps? Is there a FAQ? Is there a manual?
It got even better when I started asking whether there were basic checklists for things I was already doing. What if I just looked at my daily life and tried making it as easy as possible?
That question led to the systematic application of minimalism to every part of my life. More love, less of whatever else this is. Wherever I can get rid of stress or self-imposed obstacles, that’s a place where I can let more love in and breathe more love out.
In a way, belief in difficulty is a belief in fate, in evil, and in hopelessness. Let’s throw our hands in the air and collectively sigh OH WELL. Nothing could be done. Well, that sucked.
I claim that with free will and determination, we can do anything. We can’t always stop every bad thing from happening, like a hurricane, but then not every natural disaster is “bad.” Is it bad when there’s a giant storm on the planet Jupiter? Is it bad when there’s a hurricane in the middle of the sea if it never reaches land? If we define something as “bad” only when it causes human suffering, then can’t we do more to eliminate the human suffering that we can affect today?
Starting with our own?
The thing about belief in difficulty is that it restricts us. When we feel caught up in stress and drama of the ordinary sort, we feel too burned out and powerless to do anything to change our own situation, much less anyone else’s. We can easily slip into a position where we’re making our problems INTO someone else’s. Our desire to vent and complain becomes someone else’s headache. Our refusal to address our own problems until they reach breaking point can become an urgent crisis for someone else. When we feel that we have no free will, then we feel like our actions don’t matter. As if that were possible. As if it were possible to even exist without making an impact on the world!
As an example, I had a bad breakup once, many years ago. Looking back, the immediate cause was that I got sucked into a lot of negativity and drama on an internet listserv. This was long before we had a pop culture understanding of trolling or flame wars. I didn’t have the perspective to see that the hours I spent reading and responding to these threads was a complete waste of time that did nothing to serve me or anyone else. My boyfriend was the one person I thought I could talk to, the one place where I went to process all this junk. He tried. He asked me why I was talking to these people and made a few suggestions, which I took to mean that he didn’t understand and wasn’t being a good listener. I bought into a reality in which an email list was more important than my romantic partner’s companionship. In retrospect, I never would have spent five minutes on this activity. Think of all the good books I could have read instead.
Life is easier for middle-aged people in so many ways. I’d never want to be that young again, or at least not without all my hard-won experience.
I no longer believe in the difficulty of feeding trolls. I no longer believe in the difficulty of reading the comments or engaging with naysayers.
I no longer believe in the difficulty of the chronic pain and fatigue that I suffered as a young person. This might sound cruel or flippant to someone who is currently living that reality. I only mention it because every source I consulted when I was ill affirmed that I always would be, and there was nothing I could ever do about it. This is patently false. I got better, and probably other people could, too.
I no longer believe in the difficulty of poverty, and again, see above. It wasn’t instant, but I eventually learned how to earn more and get a job with benefits. There is plenty for everyone in this world, and it’s only our belief in scarcity that restricts that natural abundance. We feel threatened by the very idea of having to share, and that’s the first sign.
I no longer believe in the difficulty of poor body image. That comes from strong self-efficacy. I have it within me to learn how to do anything, to eventually reach any goal I set for myself, to hold myself accountable, and to go after what I want. I’m allowed to build muscle, get sweaty and muddy, explore the world, expand my abilities, and look however I want. If someone else has a problem with that, why should I care? My body isn’t about you.
There are difficulties that still captivate my attention. As I recognize them, I work on them. I simply question myself, Is that really true? Do I want it to be?
Wherever I have a difficulty, it’s certainly a smaller, less significant one than someone else’s. If it’s difficulty that bothers me, then logically I should care about the worst difficulties, not just those that affect me. Injustice where it’s worst, not injustice that I feel personally. Crisis where it’s worst, not just mine.
There’s a guy sitting two tables from me who is wearing glasses with broken frames. One arm is completely missing and they’re sitting catty-whampus across his nose. He’s tilting his head to the side so they don’t fall off. This is a guy who believes in difficulty! Surely there are several charities that could help him, or maybe someone would be willing to fix his glasses for free if he asked nicely. Maybe he could buy another pair at Goodwill and scavenge an arm, or fit his existing lenses in different frames. Maybe he could find a twig or a piece of cardboard and tape it into place. A thousand things would be easier than what he’s doing right now. He’s playing with his smartphone, so I somehow wonder whether money is the problem?
Looking for a demonstration of a principle, evidence is usually close to hand. I feel lucky that I happened to be writing about this topic as this guy with the one-armed glasses sits nearby. Well, that was easy! I turn my attention to areas of life where everything is effortless and easy. I always have the opportunity to focus on my breathing. I always have the opportunity to appreciate my loved ones. I always have the opportunity to let go of my past hurts. I always have the opportunity to look to my own behavior, change my own perspective, and improve my own attitude.
My bicycle is celebrating its 21st birthday this year. In some ways, I feel like it’s a birthday for me, too, because I believe this very same bike may have saved my life. I credit it with the surprising and sudden disappearance of a thyroid nodule that could have been cancerous. I’ll never know, and neither will my doctors, because I was lying on the gurney waiting to be wheeled in for the biopsy when an ultrasound revealed that it was gone. I got to go home without any holes in my throat. The next day, I was back on the bike.
This poor old bicycle has moved with me something like twenty times. We’re on something like its fifth set of tires, second seat, second set of grip shifts, second quick-release, second chain, fourth set of brake pads, third headlight, second tail light, and even a second lower bracket, because the first one was filled with water when they did our last tune-up. I’m ashamed to admit that my dear old bike spent the past year on the porch, mere yards from the cruel salty sea. I hadn’t been for a ride in something like three years.
I called a local bike shop that offers free pick-up and delivery. Since my husband and I no longer have a pickup truck, it was this or push my flat-tired old rust bucket a mile and a half down the road. When the repair guy came to get it, one of the brake pads actually fell off. So that was embarrassing.
They came back a week and a half later. Repair guy lifted my old bike out of the back of the truck. The light hit it, and it gleamed a deep red, just like the day I first saw it in the warehouse. My bike, Old Paint. A frisson of delight and excitement hit me.
Hey! There you are!
Monday morning, I set off on my first ride. Two miles and a bit, straight up a grinder of a hill to my martial arts gym.
I was a mess. I was leaving late and I didn’t realize that my helmet and all my other gear were still packed away in a storage tub. Executive decision: Be careful and get it out when I get home. My center of gravity was off, and every time I came to a stop light I’d feel like I was going to tip over sideways. When I would pass another bike going the opposite direction, I’d instantly have this strong visual that we were going to smash into each other head first. The only thing that really went well was that I still remembered my hand signals.
Then it came time to lock up. I had to go around the building looking for the bike rack I hadn’t thought to scope out in advance. Then I had to remind myself of how to position my bike so that the U-lock would go around both the rack and the frame.
I walked into the gym, late, with the crotch of my tights sweated out and looking very not glamorous at all.
The return trip was downhill. A couple of times, I got off and walked, because I felt like I was just going too fast.
That’s fair, because I had to get out and push uphill a few times, too.
By the time I came home, I had ridden almost five miles. That was enough to reawaken my forgotten identity as A Bike Commuter. A Cyclist. An adult child, tooling around on a bike known as Old Paint. My seat was adjusted to the right height and it just felt right, like comfy pajamas if they made your butt hurt later.
That’s the tricky part. The next morning, when I got back on the bike, I remembered exactly what it means to feel saddle-sore.
I know exactly where my hip bones are!
Every single time that I’ve quit riding my bike for an extended period, I’ve had to suffer through a few days of saddle soreness. Every single time, I “remind” myself not to let this happen. “I should at least sit on the bike in the living room, even if I’m not riding anywhere. Just sit there and read a book or something.” Ha. It never happens. No matter what type of exercise you choose, the easiest thing in the world is to quit doing it, never noticing the 1% fade from day to day to week to week to year to decade. Until you try to get back on that horse, and then you do.
I found my helmet and my gloves and my panniers and my handlebar bag and the extra keys to my U-lock. I had to wipe everything down, because it was, heartbreakingly, covered with dust. Like my hopes and dreams of one day completing a triathlon.
We got rid of our car over a year ago, which is relevant. My husband bought a folding bike a few months ago, and he’s been using it to get between bus stops. Since my bike was a rust bucket on the porch, I hadn’t been able to go anywhere with him. Now that I’m back on the bike, we can go together. It expands our ambit and the types of things we can do as a couple. With my panniers, I can do more types of errands, carrying more types of loads. Most importantly, I’m cutting my transit time to and from the gym in half. Being back on the bike is a positive in every way.
The strangest thing just happened to me. I was reading someone else’s book, when this insight spontaneously dropped in my mind. I snapped to attention. THAT’S IT! All these bits and pieces of family lore sprang into context. I realized that part of why I was able to fully recover from chronic pain and fatigue was that I’ve deeply internalized a series of family legends about healing and trauma. Maybe the reason other people haven’t had the same experience is that it hasn’t occurred to them that they can?
First, there’s my story. I was diagnosed with a thyroid nodule when I was 23. I was supposed to get a needle biopsy, but I procrastinated for over a year. When I finally went in, I was lying on a gurney in a paper gown, being prepped for the surgery, and the ultrasound revealed that the nodule was gone. Surgery was canceled and they sent me home.
Then, there’s my brother’s story. His spine was fractured in three places in a terrifying construction accident. He was left to lie contorted over his tool bag in the mud because they were afraid to move him. He’s training for his first marathon this year, and right now his mile time is sub-seven minutes.
Then, there’s my auntie’s story. (Paternal branch). She was diagnosed with fourth-degree liver failure and given six months to live. That was the year 2000. Still here in 2018.
Then there’s my grandfather’s story. (Maternal branch). He got mumps and was told it had made him sterile. Thus, his fourth and fifth children came as something of a surprise. If the doctors were right in Granddad’s case, I wouldn’t be here and neither would my mom.
There are probably more, if I do some interviews, but these are the family legends that popped into mind when I had my startling epiphany.
So what gives? Does getting mumps turn your grandchildren into superheroes, or what?
I’m not sure what. I have some guesses, though.
Note that each of the four stories I shared involves a different category physical problem. Endocrine dysfunction, skeletal injury, organ failure, infectious illness. There are also two separate genetic lines involved; my auntie has no blood relation to my grandfather of legend. If there are any unifying biological themes here, I have no idea what they might be.
Doctors tend to be pragmatists. It’s the nature of their work. Generally, what works for most people most of the time is close enough to truth to get the job done. Most people are functional, at least on a basic level, and human longevity is double what it was two hundred years ago, so there’s a lot they’re doing right.
There are some glaring, epic flaws in Western medical training. The first is that healthy and well people don’t come back. Feedback comes from the persistently unhealthy, those who didn’t get better and are still having trouble. Where are the data on all the people who got better? Second, the process of earning a medical degree is so contrary to physical well-being that it’s a wonder anyone survives. Chronic sleep deprivation, stress, overwork, and burnout are core requirements of the curriculum. Third, doctors are not taught nutrition! We have a fix-what’s-broken perspective rather than a maintain-and-improve perspective.
Would a doctor recognize what a healthy and thriving person was doing right? Enough to teach it to other patients?
I can tell you what I did that I believe reversed my thyroid disease. While I was busy procrastinating and not wanting to find out whether I had cancer, I began a very strenuous exercise program. I went from zero to riding my bicycle at least fifteen miles a day, on hilly terrain that required every one of my 21 gears. I got so strong that I could pick up my bike, rest it on my shoulder, and dash up a flight of stairs without thinking about it.
My brother swears by yoga. He was in great shape when he broke his back; it’s possible that if he hadn’t been so lean he might not have survived his accident. He’s also been a vegetarian for like twenty years (just saying).
As for my auntie and my granddad, I have no idea. I’m not sure whether they would have had any guesses either. It wouldn’t be wrong to list the character trait of stubbornness here.
Intuitively, I think part of what’s going on is whether we believe in a story, and how that belief influences our behavior. There can also be a huge gulf between what the doctor actually said and how the patient INTERPRETS what the doctor said. I have heard more than one person tell me, quote, “I physically can’t lose weight” based on what a doctor supposedly said, and I bet a shiny copper penny that no doctor has ever said that to anyone, ever, at any time. I also don’t think that medical professionals use the word “incurable,” but we tend to hear that a lot, too. For some reason, a lot of people positively adore talking about illness, disease, surgery, prescriptions, accidents, trauma, and negative outcomes. What this variety of person does with otherwise sound medical information, who can say?
So. One person goes to the doctor with [HEALTH PROBLEM] and eventually recovers. Another person goes to the (same) doctor with [IDENTICAL HEALTH PROBLEM], comes home believing in the problem, and never gets better. Does the second person’s complete package of behavior match the first person’s complete package of behavior? Why are we not studying this?
What I do differently than other people is to introduce myself to doctors as a health-oriented person. I tell them I’m a marathon runner and that I “want to get back in action” or something similar. I tell them that “I try to be as proactive about my health as possible.” Then they look at my labs and realize that my blood work backs me up. While I have the opportunity, I ask as many questions as possible. For instance, I cut my sclera last year, and when I went in to the optometrist, I asked her about this hypothesis that people could gradually correct their vision mechanically by spending more time outdoors and looking at different distances. She said sure, that sounded plausible. I’m one of the only people in my family who has never needed glasses, so I take this to confirm my bias toward exercise and outdoor pursuits. Since I tend to believe that I am entitled to perfect health, I work to attract information that supports my belief - and ignore anything that contradicts it.
Oh, yeah, and my eye healed, too. 20/80 back to 20/20 in two weeks.
Who knows what the future will bring? Maybe I’ll wind up a victim of spontaneous human combustion. Maybe I’ll sprout antlers or turn purple. Who knows? In the meantime, I’m in enviable shape for a middle-aged American woman. I have every intention of living to be 111. I see no reason to change my mind and start adopting negative, pessimistic views about illness and injury. A doctor told me once, “Whatever you’re doing, keep doing it,” and that’s medical advice I actually trust.
If you have only one spoon today, I’m honored that you’re using it to read this. If you are fortunate enough not to know what “spoons” refer to, I’ll briefly explain that it’s a subjective unit of measure for people with chronic pain and fatigue issues, or other hidden illnesses. I’d like to share some thoughts that came up when I recently got some reader mail thanking me for writing about my experience beating fibromyalgia. (I see you! <3)
It puzzles me that virtually all of the online presence for invisible illnesses seems to be about emotional support and painstakingly tutoring “well” people in the details of our diagnoses. Aren’t we... trying to feel better? Shouldn’t we see a disease as an opponent, not a roommate or a spouse? Shouldn’t we be trying to GET MORE SPOONS??? Stop sleeping with the enemy and tell it to pack its bags because it is out of here.
First off, the concept of chronic illness drives me crazy. I believe that it is unscientific for a doctor or anyone else in the medical community to describe something as “incurable.” Just because nobody has cured it YET doesn’t mean it will never happen. Isn’t your entire job to try to cure and treat illnesses?
I’m pro-science. Let’s not get confused about that. I always get my flu shot and I’ll promote vaccinations to anyone who will listen. If a doctor gives me a prescription for antibiotics, I fill it and I take the full course. If I get a printout of instructions to do physical therapy exercises, or anything else, I follow those instructions. I’m obedient and open to input. This is why it upsets me so much when I’m treated with condescension by doctors.
The doctor who patted me on the shoulder and assured me that there were in fact zero ways I could modify my diet, exercise, or lifestyle to impact my thyroid disease. - FALSE
The doctor who told me he doesn’t “believe in germ theory” - UHHHH....
The doctor who told me I must have been misdiagnosed because “people don’t get better from fibromyalgia” and she knew, because her sister-in-law has it. She told me not to mention that diagnosis to doctors, because they would “automatically write you off.” Then she tried to prescribe me an anti-depressant, although I am not depressed. - HUH?
The point I’m trying to make is that just because you waited forty minutes for a fifteen-minute time slot with one overworked, obtuse physician who wasn’t able to help you, does not then mean that you are beyond help. Just because you’ve suffered for many years doesn’t mean you always will. Just because your pain is extreme does not mean it will always be that way, or that it will get worse. There are no reasons to believe that a physical illness will remain permanent and debilitating until the end of time.
I always felt that if I had to suffer, then let it be toward a purpose. Take notes on my condition and track my metrics. Record everything I tried on my search for relief and wellness. Use these notes to build a better treatment plan for the next generation of sufferers.
Then I take that attitude to my primary care physician, who invalidates my position. I’m game, try me! How many people like me constitute “anecdotal evidence” that is 100% disregarded by the medical community? How many more are laboring under false stories of sickness because this information is withheld from them?
I was diagnosed with fibromyalgia at age 23. I also had a thyroid nodule that disappeared without treatment. I suffered debilitating migraines for about ten years. I would say that I actively manage sleep issues that began 35 years ago, and I’m successful now about 90% of the time. Since then I’ve run a marathon, completed a mud run, and gone on several multi-day expeditions carrying a 40+ pound backpack. Now I’m studying the martial arts of Krav Maga and Muay Thai kickboxing. Four hours a week I repeatedly catch kicks, punches, and shoves, get thrown onto the ground, and do a full circuit-training workout. If I can think of any more extreme sport that demonstrates how fully I beat fibromyalgia, I might try it.
I’m a middle-aged woman with a history of multiple chronic illnesses. I crushed them.
I’m a formerly obese woman who fully recovered from thyroid disease. Now I wear a size XS.
How is it possible for someone of my age bracket and health history to be in better shape than I was twenty years ago?
How is it possible, when my doctors told me it wasn’t? How is it possible, when my doctors brushed off and invalidated my experiences? How is it possible, when I never took medication or had surgery?
There are three reasons.
First, I didn’t have a choice. My ex-husband divorced me when he realized how sick I was. I didn’t even have health insurance, much less another human who could help me get out of bed or fill in for tasks I couldn’t do. I had to get up and take care of myself because I was the only one I had.
Second, most of my insights and epiphanies and realizations and hypotheses came from TOTAL ACCIDENTS and coincidences. I would notice something that didn’t seem to make sense, and as it caught my attention, I would start to track more details while I tried to figure it out.
Third, being told that something is impossible is something that deeply annoys me. It’s stupid! It’s a wrong thought. It is unscientific, if I might be pardoned for repeating myself. I’ll trust a doctor who tells me to get a tetanus shot or change bandages or take eye drops. I’ll never, ever trust a doctor who tells me I’m stuck with some health condition for the rest of my life.
Nobody needs to run an obstacle course or go backpacking or start taking karate classes. That’s a high bar. All I’m asking is that we question this chronic illness paradigm. I ask that we allow for the possibility that we may one day be free. What if we’ve been misdiagnosed? What if we become “anecdotal” and have a spontaneous remission? What if we age out, as it often happens with migraines, because our hormone levels change over time? What if new research leads to new treatments, new medications, or new understanding of root cause?
Please stop sleeping with the enemy. Illness is not your body part. Illness is not one of your internal organs. Illness is not your heritage. Perfect health is your birthright. Track your metrics and keep asking questions until you have all the spoons you could ever want.
I've been working with chronic disorganization, squalor, and hoarding for over 20 years. I'm also a marathon runner who was diagnosed with fibromyalgia and thyroid disease 17 years ago.
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